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Mother of adult with autism calls Alberta’s support system ‘broken’

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A Calgary mother says she can no longer take care of her grown son with developmental disabilities, and she’s been fighting for years to get the provincially-funded support he needs to live on his own.

Lisa Matthews describes her 24-year-old son, who has autism, as gentle, artistic and fun-loving. But at six feet three inches and 450 pounds, Nicholas Matthews also faces many challenges.

“I’m afraid I’m going to find him dead in his room,” she said.

Lisa says her son struggles with depression and an eating addiction, and he spends most of his time in his bedroom working on art projects.

There have been violent outbursts and he has even attempted suicide.

“For 4½ years, we’ve been begging and pleading to get help to get Nicholas living outside of our house.”

Nicholas Matthews’ parents say they’ve been waiting for a supportive living arrangement for him through Alberta’s PDD program for more than four years. (Submitted)

While they do have funding for help inside their home, the family has been asking the province — through its Persons with Developmental Disabilities program (PDD) — for a supportive living arrangement so Nicholas can live on his own with some help.

But, according to Lisa, they’ve been faced with a barrage of setbacks, including high turnover of PDD staff. Nicholas has had six different caseworkers in four years.

“The system is a mess. There’s too much turnover. There’s too much transition … it’s broken,” she said.

To make matters worse, Lisa and her husband, Art, say they’re now struggling with physical and mental health problems they attribute to chronic stress. Art has heart problems, which required triple bypass surgery a year ago, and Lisa struggles with depression and a health condition that is still being investigated by doctors.

“[I’m] feeling helpless and hopeless because I don’t know where we go from here” she said.

Long waits a growing concern

A decade ago, Lyndon Parakin, executive director of Autism Calgary, would hear from one or two families a year in this situation.

He now hears from as many as five families per month.

“Unfortunately it’s becoming more common,” said Parakin, adding he worries about the toll these long waits for service can take on individuals and their families.

“Sometimes matters get so bad that they’re having to go to the hospital to get some help because there’s risk of harm to themselves and others,” he said.

“It becomes wearing. Your own mental and physical health is at risk,” said Parakin.

Parakin says the province needs to create a better way of transitioning people with autism to different types of care and supports as parents age or are no longer able to cope.

Lyndon Parakin, executive director of Autism Calgary says long waits for supportive living arrangements through PDD are becoming more and more common. (Jennifer Lee/CBC)

Province responds

According to the province, 60 to 70 Albertans are currently eligible for, but not receiving services through the PDD program, which is currently under review.

“[It] would not be my experience that things take that long. If the family needs supports, we would be looking to provide supports as soon as possible,” said Roxanne Gerbrandt, executive director of the disability services branch with the department of community and social services.  

She says four years is not a typical wait for a supportive living arrangement.

“How long that takes to find a right match can depend person-to-person based on the uniqueness of their needs or even the complexity of their needs,” she said.

Other factors can also play a role in wait times, according to Gerbrandt, including specific location requests, requirements that a home be on one level, safety concerns, and finding the right supportive roommate.

“Sometimes we can offer family supports that they may or may not choose to accept,” she said.

‘I’m done. I’m so tired’

While it won’t discuss specific cases, it appears the province has a different account of how long Nicholas Matthews has been on the wait list.

In a recent email to Lisa, a government official stressed the PDD team has been working with the family for just over a year to find a supportive living arrangement and that a possible placement was identified earlier this year, but turned down.

According to Lisa, they were concerned the placement wasn’t a good fit and were unable to arrange a time to view the home.

Several hours after CBC News first requested information about their case, the province contacted Lisa about two more potential homes, but she says neither worked out and the search continues.

If a home isn’t found soon she says she may consider a drastic step — dropping her son off at a police station or PDD office.

“[We] can’t continue on the way we’ve been going. I’m done. I’m so tired,” she said.

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‘Too soon to celebrate’ Ottawa’s low case count, says Etches

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Ottawa Public Health (OPH) logged just 11 new cases of COVID-19 on Tuesday, the lowest daily total since Sept. 1.

Because of the lag between testing and reporting, the low number could simply reflect low turnout at the city’s testing sites on weekends — all month, new case counts have been lower on Tuesdays and Wednesdays. 

During a virtual news conference Tuesday, the city’s medical officer of health Dr. Vera Etches said she doesn’t read too much into a single day’s report.

“I don’t think we can make too much of 11. Actually, it could be a lot higher tomorrow — I would expect that, on average,” she said. “It’s too soon to celebrate.”

Provincewide, public health officials reported 1, 249 new cases Tuesday.

OPH also declared 62 cases resolved Tuesday, lowering the number of known active cases in the city to 462. Two more people have died, both in care homes currently experiencing outbreaks, raising the city’s COVID-19 death toll to 361. 

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Santa Claus isn’t coming to Ottawa’s major malls this year

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Santa Claus may still be coming to town this Christmas, but he won’t be dropping by any of Ottawa’s major malls, thanks to the COVID-19 pandemic.

On Friday, Cadillac Fairview said Santa won’t be making an appearance at any of its 19 malls across Canada, including Rideau Centre in downtown Ottawa. On Tuesday, Bayshore and St. Laurent shopping centres confirmed they, too, are scrapping the annual tradition.

“Due to the evolution of the situation in regards to COVID-19, we have made the difficult decision to cancel our Santa Program and Gift Wrap Program this year,” Bayshore spokesperson Sara Macdonald wrote in an email to CBC.

Macdonald said parent company Ivanhoé Cambridge cancelled all holiday activities “due to the rising number of COVID-19 cases across the country.”

Macdonald said families that had already booked an appointment to visit Santa will receive an email with more information.  

Virtual visits with Santa

Rideau Centre said based on customer research and discussions with public health officials, its North Pole is going online this year.

“Children will be able to have a private chat with Santa,” said Craig Flannagan, vice-president of marketing for Cadillac Fairview. “You’ll also be able to join a 15-minute storytime with Santa over Facebook Live.” 

At Place d’Orléans Shopping Centre, visitors are invited to take a “selfie with Santa” — actually, a life-size cutout of Santa Pierre, the man who’s been playing Santa at the east end mall for years.

“We understand that this is not ideal, but in lieu of this tradition we will be doing what we can to maintain and encourage holiday cheer,” according to a statement on the mall’s Facebook page.

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Ottawa Bylaw breaks up two large parties in Ottawa over the weekend

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OTTAWA — Ottawa Bylaw is investigating social gatherings of more than 10 people in private homes across Ottawa last weekend.

Mayor Jim Watson tells Newstalk 580 CFRA that Ottawa Bylaw broke-up two house parties over the weekend, with 20 to 25 people at each party.

“That’s the kind of stupidity that angers me, that’s where the bulk of the transmissions are taking place, if we exclude the tragedy of the long-term care homes; it’s these house parties with unrelated people,” said Watson on Newstalk 580 CFRA’s Ottawa at Work with Leslie Roberts.

“The message doesn’t seem to be getting through, particularly to some young people who think they’re invincible.”

In a statement to CTV News Ottawa, Bylaw and Regulatory Services Director Roger Chapman says, “There are still ongoing investigations from this past weekend that could result in charges.”

Chapman says recent investigations led to two charges being issued for social gatherings of more than 10 people in a private residence in contravention of the Reopening Ontario Act.

“In one case, up to 30 individuals were observed attending a house party in Ward 18 on Oct. 24,” said Chapman.

“The second charge was issued following a house party in Ward 16 on Oct. 31, where up to 16 individuals were observed to be in attendance.”

The fine is $880 for hosting an illegal gathering.

Alta Vista is Ward 18, while Ward 16 is River Ward.

Ottawa Bylaw has issued 24 charges for illegal gatherings since the start of the pandemic.

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