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Mother of adult with autism calls Alberta’s support system ‘broken’

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A Calgary mother says she can no longer take care of her grown son with developmental disabilities, and she’s been fighting for years to get the provincially-funded support he needs to live on his own.

Lisa Matthews describes her 24-year-old son, who has autism, as gentle, artistic and fun-loving. But at six feet three inches and 450 pounds, Nicholas Matthews also faces many challenges.

“I’m afraid I’m going to find him dead in his room,” she said.

Lisa says her son struggles with depression and an eating addiction, and he spends most of his time in his bedroom working on art projects.

There have been violent outbursts and he has even attempted suicide.

“For 4½ years, we’ve been begging and pleading to get help to get Nicholas living outside of our house.”

Nicholas Matthews’ parents say they’ve been waiting for a supportive living arrangement for him through Alberta’s PDD program for more than four years. (Submitted)

While they do have funding for help inside their home, the family has been asking the province — through its Persons with Developmental Disabilities program (PDD) — for a supportive living arrangement so Nicholas can live on his own with some help.

But, according to Lisa, they’ve been faced with a barrage of setbacks, including high turnover of PDD staff. Nicholas has had six different caseworkers in four years.

“The system is a mess. There’s too much turnover. There’s too much transition … it’s broken,” she said.

To make matters worse, Lisa and her husband, Art, say they’re now struggling with physical and mental health problems they attribute to chronic stress. Art has heart problems, which required triple bypass surgery a year ago, and Lisa struggles with depression and a health condition that is still being investigated by doctors.

“[I’m] feeling helpless and hopeless because I don’t know where we go from here” she said.

Long waits a growing concern

A decade ago, Lyndon Parakin, executive director of Autism Calgary, would hear from one or two families a year in this situation.

He now hears from as many as five families per month.

“Unfortunately it’s becoming more common,” said Parakin, adding he worries about the toll these long waits for service can take on individuals and their families.

“Sometimes matters get so bad that they’re having to go to the hospital to get some help because there’s risk of harm to themselves and others,” he said.

“It becomes wearing. Your own mental and physical health is at risk,” said Parakin.

Parakin says the province needs to create a better way of transitioning people with autism to different types of care and supports as parents age or are no longer able to cope.

Lyndon Parakin, executive director of Autism Calgary says long waits for supportive living arrangements through PDD are becoming more and more common. (Jennifer Lee/CBC)

Province responds

According to the province, 60 to 70 Albertans are currently eligible for, but not receiving services through the PDD program, which is currently under review.

“[It] would not be my experience that things take that long. If the family needs supports, we would be looking to provide supports as soon as possible,” said Roxanne Gerbrandt, executive director of the disability services branch with the department of community and social services.  

She says four years is not a typical wait for a supportive living arrangement.

“How long that takes to find a right match can depend person-to-person based on the uniqueness of their needs or even the complexity of their needs,” she said.

Other factors can also play a role in wait times, according to Gerbrandt, including specific location requests, requirements that a home be on one level, safety concerns, and finding the right supportive roommate.

“Sometimes we can offer family supports that they may or may not choose to accept,” she said.

‘I’m done. I’m so tired’

While it won’t discuss specific cases, it appears the province has a different account of how long Nicholas Matthews has been on the wait list.

In a recent email to Lisa, a government official stressed the PDD team has been working with the family for just over a year to find a supportive living arrangement and that a possible placement was identified earlier this year, but turned down.

According to Lisa, they were concerned the placement wasn’t a good fit and were unable to arrange a time to view the home.

Several hours after CBC News first requested information about their case, the province contacted Lisa about two more potential homes, but she says neither worked out and the search continues.

If a home isn’t found soon she says she may consider a drastic step — dropping her son off at a police station or PDD office.

“[We] can’t continue on the way we’ve been going. I’m done. I’m so tired,” she said.

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List of Tourist Attractions Open Now in Ottawa

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With Ontario now in Step 3 of 2021 three-step plan for reopening, museums and other indoor attractions are allowed to reopen with capacity limited to not exceed 50 per cent capacity indoors and 75 per cent capacity outdoors.

Here is a list of Ottawa attractions you can visit starting July 16th.

Do remember to wear masks and buy tickets in advance.

Parliament Hill

Parliament’s Centre Block and Peace Tower are closed for renovation.

You can join for tours of the Senate of Canada Building (2 Rideau Street), House of Commons at West Block (111 Wellington Street) on Parliament Hill, and East Block at East Block (111 Wellington Street) on Parliament Hill.

When: Grounds open; guided tours of Parliament are suspended through the summer of 2021.
Where: 111 Wellington Street, Downtown Ottawa

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Ottawa performer leapfrogs from gymnastics to Broadway to TV

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A new AppleTV+ series set in a magical town that’s stuck in a neverending 1940s musical includes a pair of Ottawa siblings in the cast. 

Warren Yang and his sister, Ericka Hunter, play two of the singing, dancing residents of the village portrayed in Schmigadoon!, a small-screen series that takes its cues from classic musicals like Brigadoon, Wizard of Oz and Sound of Music, and skewers them with the offbeat comedic mastery of Saturday Night Live. 

In fact, you’ll recognize many of the names from SNL, starting with executive producer Lorne Michaels, creator of the late-night, live-comedy sketch show. Schmigadoon! also stars SNL cast member Cecily Strong and comedian Keegan-Michael Key, who hosted SNL in May. They play a New York couple who get lost on a hike and stumble into a strange town where everyone sings and dances. 

For Yang, a relative newcomer to show-biz, the series marks his television debut. For Hunter, the younger of his two older sisters, it’s the latest in a career path that began with dance lessons as a child more than 30 years ago. She attended Canterbury High School, Ottawa’s arts-focused secondary school. 

“Her dream was always to perform,” said Yang, 34, in an interview. “But that was never the path I thought was an option for me.” 

While his sister studied dance, Yang did gymnastics. He was an elite gymnast throughout his youth, ultimately leaving Merivale High School at 16 to train in Montreal, finishing high school through correspondence courses. He was a member of the Canadian National Team and received a scholarship to study at Penn State, majoring in marketing. 

A few years after graduation, Yang was working at an advertising agency in Toronto when he got a call from a Manhattan number. To his astonishment, they asked if he would be interested in auditioning for a Broadway revival of Miss Saigon.

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COVID-19: uOttawa to require vaccination for students living in residence

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Vaccination will be mandatory for students who want to live in residence at the University of Ottawa this year, with proof of vaccination and at least one dose required before move-in, or within two weeks of doing so if they can’t secure a shot before arriving.

Those who can’t receive a vaccine for “health-related reasons or other grounds protected under the Ontario Human Rights Code” will be able to submit a request for accommodation through the university’s housing portal, according to information on the university’s website.

Students with one dose living in residence will also have to receive their second dose “within the timeframe recommended by Ottawa Public Health.”

People who haven’t been granted an exemption and don’t get vaccinated or submit proof of having done so by the deadlines set out by the school will have their residence agreements terminated, uOttawa warns.

“Medical and health professionals are clear that vaccination is the most (effective) means of protecting people and those around them,” reads a statement provided to this newspaper by uOttawa’s director of strategic communications, Patrick Charette.

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“It is precisely for this reason that the University of Ottawa is requiring all students living in residence for the 2021-2022 academic year to be fully vaccinated. The University recognizes that some students may require accommodations for a variety of reasons and will be treating exceptions appropriately.”

Faculty, staff and students are also strongly encouraged to get vaccinated, the statement notes.

“Ensuring a high vaccine coverage in all communities is critical to ensuring an ongoing decline in cases and ending the pandemic. This will be especially important with the return of students to post-secondary institutions in our region in the fall of 2021.”

Neither Carleton University nor Algonquin College is currently mandating vaccination for students living in residence, according to the websites for both schools. But uOttawa isn’t alone in its policy – Western University, Trent University, Durham College and Fanshawe College have all implemented similar requirements. Seneca College, in the GTA, is going even further, making vaccination mandatory for students and staff to come to campus, in-person, for the fall term.

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